Overcoming Fear and Embracing Strength: My Journey with Epilepsy and Motherhood

Stacey Chillemi
3 min readDec 2, 2023

Can you share with us what physical challenge you have and how long have you been dealing with it?

As I sit down to reflect on my journey battling epilepsy, I can’t help but acknowledge that this condition has been a constant presence in my life for as long as I can remember. At the tender age of five, I experienced my first seizure, and my life was forever changed.

Growing up, I often struggled to come to terms with the highs and lows that came with this condition. The unpredictability of my seizures made it challenging to lead a ‘typical’ childhood, and at times, it felt as though the world was closing in on me. But amidst the struggles, there were also moments of pure joy and triumph that served as a reminder of my strength and resilience.

Over the years, I’ve had to adapt to the ebb and flow of epilepsy, learning to take each day as it comes and cherish the moments of clarity and peace. While there have been moments of frustration and heartache, my journey has also shown me the immense power of the human spirit to overcome adversity and find purpose in the face of challenges.

My story is not one of defeat but rather one of resilience and hope. It is a testament to the strength of the human spirit and the unyielding determination to live a life filled with joy and purpose despite the odds.

Were you afraid to have children, and were you advised not to?

In the depths of my own vulnerability, I faced a question that many consider one of life’s most pivotal crossroads: should I dare to have children despite being labeled a high-risk pregnancy? Fear, like an unwelcome companion, nestled its way into the corners of my heart, casting shadows of doubt and worry. And yet, the truth is, I did grapple with my apprehensions.

Whispers of caution echoed in the corridors of my mind, and there were moments when I wondered if I would ever be capable of becoming a mother. Doubts crept in, threatening to overpower the flickering flame of hope within me. However, it was in those moments of uncertainty that I discovered the unwavering support of my epileptologist, family, friends, and a higher power that guided me toward the path I was meant to walk.

Together, we faced the daunting reality of my condition head-on. We sought wisdom from medical professionals, delving deep into the possibilities and exploring all potential outcomes. Armed with knowledge and fortified by the love and encouragement of those closest to me, I found the courage to follow my heart’s desire.

It was not an easy journey, for the road ahead was paved with unforeseen challenges and new hurdles to surmount. But in the face of adversity, I realized that my strength extended far beyond the confines of my epilepsy. It was within the willingness to confront my fears, to trust the process, and to rely on the pillars of support that surrounded me.

As I stand here today, on the other side of uncertainty, I can confidently say that my fears were conquered. My decision to become a mother was not driven by impulsive whims, but rather anchored in a profound understanding of my own capacity for resilience. I chose to embrace the unknown, to challenge the limitations that others tried to cast upon me and to fill my heart with unwavering hope.

Now, with children who are the embodiment of joy and love, I look back on those fearful moments with gratitude. They were the catalysts that propelled me forward, granting me the opportunity to witness the beauty that comes with stepping outside one’s comfort zone.

To all those who find themselves standing at this same precipice, I implore you to listen to the whispers of your heart. Seek guidance, lean on those who uplift you, and trust in yourself. Embrace the power that resides within and know that, with determination, support, and an unwavering belief in what is possible, you have the strength to overcome any fear and embark on the most remarkable of journeys.

MY BOOK: EPILEPSY YOU’RE ALONE
A personal approach to how to cope with the disorder. — https://amzn.to/3zgEddZ

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